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Netzwerk für angeborene Störungen der Blutbildung. Congenital Bone Marrow Failure Syndromes. Wir führen zurzeit eine Evaluation unserer Internetpräsenz durch und würden uns freuen, wenn Sie sich zwei Minuten Zeit nehmen würden, um den diesbezgl. Sowie die medizinische Universitätsklinik Ulm. Teil Es sollen Patienten mit seltenen Erkrankungen der Blutbildung, wie der angeborenen Neutropenie. Und der angeborenen dyserythropoetischen Anämie.
The Canadian Fanconi Anemia Research Fund. Fanconi Canada is a registered charity that funds research in Canada into an effective treatment and, ultimately, a cure for Fanconi anemia and serves as a support network for affected Canadian families. Fanconi Canada Funds Leukaemia Research Project at Sick Kids. CRA registration number 868951724 RR 0001.
What is Shwachman-Diamond Syndrome? Shwachman Diamond Syndrome Foundation. Advocate for and find research towards improved treatment and a cure. Raise awareness of SDS in the medical community and general public. Provide educational and emotional support to patients and their families. Link families through the Internet and family conferences. Tough Mudder Run a Success.
The discussion forums for people affected by bone marrow failure diseases. Patients and their families, friends, and caregivers assist and support each other through discussion and sharing. The diseases are rare, but the patients and those who care about them are not alone! The first line of defense against bone marrow failure diseases. More about bone marrow failure diseases. You can exchange tips and s.
Monday, June 8, 2009. Thursday, May 21, 2009. Our Be The Match Marrowthon! Sunday, March 29, 2009. My great big blog for February and March.
so here we are once again. A bit of the old and a bit of the new. The House of Marrow 2. Happy New Year and Happy Halloween for all to come,.
Marrowind The Elder Scrolls 3 s my all time favorite game. I started playing about three years ago and still play here and there. So I decided to start a walk-through of all the cool things and how to beat the quests. Saturday, August 22, 2009. Marrowind The Elder Scrolls 3 Map. Click on picture for larger version.
This is the place where you can personalize your profile! By moving, adding and personalizing widgets. You can drag and drop to rearrange. You can edit widgets to customize them.